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Fixes and Updates

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April 13, 2020

ANNOUNCEMENTS

  • Starting September 2020 HBN protocol has been updated to follow a hybrid visit structure of both remote and in-person visits depending on participants’ needs and schedules.

PROTOCOL DISCONTINUATIONS

  • Phenotypic Protocol Discontinuations Although the office has re-opened for hybrid visit structure, we have permanently discontinued the following in-person protocols. Specifically, fitness protocol was discontinued due to limitations of requiring physical activity to participants while wearing masks.
    • Adaptive Cognitive Evaluation
    • Fitness Protcol
      • Treadmill Tests
      • FitnessGram

December 07, 2020

ANNOUNCEMENTS

  • Due to the COIVD-19 pandemic, we have discontinued some of the protocol and made necessary changes to the procol in order to continue data collection safely and remotely.

PROTOCOL Additions

  • New phenotypic assessment
    • Gilliam Autism Rating Scale 3 (GARS-3)

September 19, 2019

The following updates are included in Release 7.0:

DISTRIBUTION NOTE

  • Phenotypic Data Acess
    • Starting from release 7, COINS will no longer have newly updated data for KSADS and Adaptive Cognitive Evaluation (ACE). Both data will be only accessible in LORIS.

PROTOCOL ADDITIONS

  • New phenotypic assessments
    • GRIT Scale (GRIT)
    • General Self Efficacy Scale (GSE)
    • Positive Behavior Scale (PBS)
    • Child Flourishing Scale (CFS)
    • Traumatic Brain Injury Questionnaire (TBI)
    • McMaster Pediatric Migraine Questionnaire (Peds_Migraine)
    • Parent Mental Health Screen (PMHS)
    • Internet Usuage Questionnaire Parent (IUQ_P)
    • Internet Usuage Questionnaire Self Report (IUQ_SR)
      • NOTE: IUQ_SR items evaluating gambling and sexual activities on the internet was not administered to participants younger than 11 years of age.

PROTOCOL IMPROVEMENTS

  • Adverse Childhood Events (ACE) has been separated into 2 different files: ACE_P and ACE. Previously, ACE has been administered as a self report for participants over the age of 18. From January 2019, ACE has been administered to all participants' Parents.
    • ACE_P: includes Parent Reports of all participants with additional 7 questions that may be useful for research purposes. These additional 7 questions are not included in the scoring algorithm for calculating the total ACE score.
    • ACE: includes Self Reports from participants above the age of 18 before the protocol change.

DATA FIXES

  • fMRI Data. We recently detected a temporal disparity in the audio and visual stimulation (~100-200ms), arising from the interaction of PsychoPy application platform with the movie file used for the “Despicable Me” during the fMRI session. To assess the perceptibility of this disparity, 71 participants were given a post-session questionnaire probing their awareness of the disparity, finding that it was only detected by 7.04% participants. Moving forward, the presentation software has been replaced. In future releases, when data with the new software is distributed, this will be carefully noted. We apologize for this error.

  • Structural MRI Data.Structural MRI data from all sites were found in LPI orientation, despite the convention of using RPI in INDI. The right-left orientation was correct. Nonetheless, to protect against any confusion when using other INDI datasets, the data have been re-oriented to RPI on 9/6/2019.

  • Phenotypic Data. Small deviations in some of the Phenotypic assessments’ scores from Release 1 to Release 6 were detected during data quality control. Our analysis has revealed that all the mean correlations between the deviated scores and the correct scores in all the assessments are greater than 0.97. Release 7 will have the fixed scores in all the Phenotypic assessments. The table below displays the correlation value for assessments with one total score and upper/lower bound correlations for assessments with subscales.
    R7_correlations


August 15, 2018

KSADS data on LORIS (Diagnosis_KSADS) has been updated. Fields are now named after the item name, rather than numerically. Data will be uploaded to COINS next week.


The most up-to-date scan parameters from the console (pdf) are available for each MRI scan site on the MRI Protocol Page


July 31, 2018

The following updates are included in Release 4.0:

RELEASE CONTENTS

  • Phenotypic data
    • New datasets: n = 416
    • Total datasets: n = 1551
  • Neuroimaging data
    • EEG (raw and pre-processed) and Eyetracking
      • New datasets: n = 359
      • Total datasets: n = 1306
      • EEG data were pre-processed using methods from Langer et al.
    • Multi-modal MRI (raw and pre-processed)
      • New datasets: n = 402
      • Total datasets: n = 1379
      • Data were pre-processed via Mindboggle.
      • Scan data now include Predictive Eye Estimation Regression (PEER) scans. PsychoPy scripts for the MRI naturalistic viewing and PEER paradigms are available for download on the neuroimaging data access.

ANNOUNCEMENTS

  • Users can now use the HBN biobank forum to ask questions and discuss topics related to the HBN dataset. Please note that users must use their Google account to request access to the forum, and that all posts need to be approved before being made public.

PROTOCOL ADDITIONS

  • New phenotypic assessments
    • Columbia-Suicide Severity Rating Scale (C-SSRS)
    • Positive and Negative Affect Scale (PANAS)
    • Dishion Social Acceptance Scale - Teacher
    • Fitness - Endurance (Treadmill test of endurance)

PROTOCOL FIXES

  • Scan parameters on the MRI protocol page have been updated to reflect changes to the protocol announced on Jan. 22, 2018.
    RUBIC Scan Parameters
    CBIC Scan Parameters

DATA ADDITIONS

  • Phenotypic Data
    • Sibling Matching Data
    • Activities of Daily Living (ADL) questions added to developmental history section of intake interview (Instrument in COINS/LORIS: PreInt_DevHx)

July 18, 2018

Phenotypic data for release 4.0 (n = 1551) are now available on COINS and LORIS. Neuroimaging data will be available later this month.


Jan. 31, 2018

The following updates are included in Release 3.0:

PROTOCOL ADDITIONS

  • Citigroup Biomedical Imaging Center (CBIC) at Weill Cornell Medical College- We are pleased to announce the addition of CBIC as a scan site for the Healthy Brain Network. Located in the Upper East Side of Manhattan, New York, this center will serve as a major scan site with coverage of participants from the Manhattan and nearby areas to the east (e.g., Brooklyn).
  • New phenotypic assessments
    • Adaptive Cognitive Evaluation (ACE)
    • Inventory of Callus-Unemotional Traits Self-Report (ICU-SR)
    • Temporal Discounting Task
    • More detailed data from theNIH Toolbox (previous releases include only scores)
    • Inclusion of fitness protocol of aerobic capacity for participants over age 12.

PROTOCOL DISCONTINUATION

  • Phenotypic assessments
    • Quotient ADHD System

PROTOCOL IMPROVEMENTS

  • Integration of Prospective Motion Correction (In Progress)- The most commonly cited challenge for the collection of data from children and hyperkinetic clinical populations is head motion. As part of an effort to minimize the impact of head motion on the collection of data from HBN participants, we have begun the process of adding prospective motion correction to our protocols. Specifically, the Align sequence used by the NIH ABCD Study was added at the CBIC site for the T1 and T2-SPACE images. For the purposes of maintaining continuity, and facilitating comparison of results, we have maintained acquisition of the initial T1 image at CBIC as well. Addition of the T1 at RUBIC is pending a port of the sequence to VB19A.

    File identifiers:

    • T1 – HCP-based Sequence (no VNav)
    • T1 – ALIGN (VNav with and without surface coil intensity correction)
    • T2–SPACE HCP-based Sequence (no VNav)
    • T2-SPACE – ALIGN (VNav with and without surface coil intensity correction)

DATA ADDITIONS

  • Voice transcription data. Release 3 data include transcriptions of voice recordings taken after the MRI scan, where participants described the plot of The Present and their reaction to the film. These files (.txt, n = 232) will be available in the Document Repository on LORIS and under Study Docs in COINS.

DATA FIXES

  • Diagnostic Data. Users should note that the assessment "ConsensusDx" has been changed to "Diagnosis_ClinicianConsensus" in order to address confusion with finding participant diagnostic information. In addition, diagnostic data from the computerized Kiddie Schedule for Affective Disorders and Schizophrenia (KSADS) will be available as "Diagnosis_KSADS," providing another option for diagnostic data. While for most participants, diagnoses will be consistent between the clinician consensus and the KSADS results (the clinician consensus diagnosis is determined from the KSADS results, as well as from other assessments), the clinician consensus diagnosis data include a wider range of diagnoses, including autism and learning disorders.

DISTRIBUTION NOTE

  • S3 Directory Structure. HBN neuroimaging data are now available in both compressed (.tar.gz) and uncompressed format in S3, under the directories fcp-indi/data/Archives/HBN and fcp-indi/data/Projects/HBN, respectively. Data will still be available for direct download on the neuroimaging downloads page, but only for compressed files.

Jan. 22, 2018

We have changed the order of scans in the HBN protocol to maximize yield. Scan types are now classified as minimal, core and extended, to reflect priority. These changes will be reflected in Release 4.0. Below we depict the change in protocol:

Release 3 - Changes in MRI Protocol

Dec. 08, 2017

EEG ReadMe files that describe event triggers and behavioral data labels have been added to the Neuroimaging Data Access page.


Dec. 06, 2017

T2-Space sequence parameters were updated in November, 2017 due to suboptimal bandwidth parameter setting that adversely affected the TE and resulted in substantially reduced T2 contrast. All the T2 images collected from Rutgers (Site RU) in both Release 1 and Release 2 are affected. The following table shows changed T2 parameters before and after the update.

Before Update After Update
Bandwidth 240 744
Echo Train Duration 1783 1243
Turbo Factor Off 195
Echo Spacing 6.3ms 3.5ms